Ilke Irem Kurt
My name is Ilke Irem Kurt and I’m 17. I’m from Istanbul, Turkey. I’m not a patient. I’m here for my best friend and my dad. I try to support them.
Hi! My name is Elgin I’m 16. I’m from Izmir, Turkey. I got diagnosed in 2010. I have Type 1 HAE. Singing, dancing and doing sports are the things I like most. I often have difficulty doing these things because if I have stomach pain or swelling, it’s harder to dance and play.
My name is Paige Rockwel I’m 13. I got diagnosed in September of 2015. I’m from the USA in North Carolina.
Hi! my name is Sophia Andrade and I’m from Connecticut, USA. I was born in Bristol, CT and have lived there my whole life. I have Type 2 HAE but that doesnt prevent me from living my life. I love music and iced tea and Dunkin. I love the sunshine and the beach and anywhere warm.
I’m Natalie Dersch. I am 16 years old, from Illinois and I play soccer. My identical twin sister has HAE Type 3. I remember going through everything trying to diagnose my sister. Whenever she goes to the ER I make sure they keep me updated. Having a twi with HAE is hard. It’s hard to watch her go through everything alone.
Hi, my name is Maddy Dersch, I am a 16 year old from Illinois. I live near Chicago and I love to visit the city. I was diagnosed with HAE Type 3 in April 2017. I try to live my life as normally as possible, I really enjoy listening to music and reading. My favourite bands are Panic! At The Disco and Twenty One Pilots. My favourite book series is Harry Potter.
Hi, I’m Diego I am 15 years old. I was born in Chile and I’m an inventor, I like to make robots and other things to help people. To pass the time I like to do great things like graffiti, draw, parkour, etc…