Isabel’s Kilimanjaro Adventures : Daily updates
Written by Isabel Brunkan I had the opportunity to summit Mount Kilimanjaro (5,895 meters / 19,341 feet) as part [...]
Top 5 Tips for Traveling with A Rare Disease
Written by Isabel Brunkan Packing for any trip requires thought but as someone traveling with a rare disease there [...]
Meet Kamila from the HAEi Youngsters Advisory Group
Hi everyone, My name is Kamila, I’m from Trujillo-Peru. Q: What was your first involvement with the HAE Youngsters’ Community [...]
Meet Jess from the HAEi Youngsters Advisory Group
Hi everyone, My name is Jessica Bogoyevitch and I am from the beautiful city of Brisbane in Australia. Q: What [...]
Catalina’s Story – Living life with HAE
Hello, I am Catalina Menéndez, I live in Buenos Aires, Argentina, and I am 32 years old. First of all, [...]
Youngsters’ Advisory Group at the 2022 Global Leadership Workshop
What a weekend – Together Again! Excitement and joy filled the air as members of the HAEi Youngsters Advisory [...]
HAEi Youngsters: Let’s Hang Out!
Hello everyone, It’s the HAEi Youngsters’ Advisory Group here, and we are very excited to welcome you to this [...]
One small step… One giant LEAP
Young people are really important, and we are passionate about the young people in our global HAE family. HAEi LEAP [...]
Introducing the NEW HAEi Youngsters Community Logo
The HAEi Youngsters Community Advisory Group has worked together with HAEi to revamp the youngsters’ community’s logo! We are very [...]
HAE day in Greece
Written by Eirini Giannakidi Being a busy student, balancing schoolwork, hobbies, and having a social life while being active [...]
We use cookies to ensure that we give you the best experience on our website.