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Hi everyone,

We are happy to announce the next HAEi Youngsters Online Meet-up is going to be on January, 30th 2021!

We start at 20:00 (08:00PM) Central European Time (CET)

If you are in the US and would love to join us the meeting starts 12:00 PM EST/11:00 AM PST

 

About this meeting

For this meet-up we want to do something different, we want to invite you to a friendly chat, where we can catch up and share what are our hopes and resolutions for 2021. However, we want to make the resolutions part a bit different. Instead of making a long list of resolutions, we want you to think of 1 word that will represent your goals and hopes for 2021.

There are so many words to think about right!

We found inspiration from an Instagram post by @brittlegills (Kat Munn) from the UK, and here is what she wrote:

“I first did this in 2019 – with ‘float’ – as I had been feeling like I was sinking and wanted to try and float above things that didn’t matter. (And obviously more swimming). Then 2020 was ‘create’. This year I’m taking inspiration from Bob Hoskins with ‘talk’ because lots of the things I relied on to keep me connected to other people disappeared in 2020. So I need to be brave and better at talking this year. I don’t do resolutions, this works better for me to just remind me of what I want without the pressure.”

We couldn’t agree more with Kat, and are excited to hear what are your words!

How to join? 

Fill in the form below to secure your spot in our online meet-up. Please note, we have only 12 spots available per meeting! 

 

Before the meeting: 

You will receive a confirmation email with information on how to join our Zoom meeting space and 3 questions to prepare

If you are new to the HAEi Youngsters Community, Don’t Worry! We will start with a “round table” introduction, so everyone has a chance to say ‘Hello!’

 

Keep in mind

The online meet-ups are for everyone (HAE patients, caregivers, siblings and partners) between the age of 12-25. We only ask that you remember to be:

  • Inclusive
  • Respectful
  • Make sure everyone feels welcome

 

Facilitators

Our facilitators for this meeting are Isabel and Nath from the Advisory group and Nevena from HAEi 🙂