Name: Talking about HAE with friends and family
Start: 2021-03-06T20:00:00+00:00
End: 2021-03-06T21:00:00+00:00
Location: Online

This event has passed.

Talking about HAE with friends and family

March 6, 2021 @ 8:00 PM - 9:00 PM

Hi everyone,

We are happy to announce the next HAEi Youngsters Online Meet-up is going to be on March, 6th 2021!

We start at 20:00 (08:00PM) Central European Time (CET)

If you are in the US and would love to join us the meeting starts 12:00 PM EST/11:00 AM PST

About this meeting

This month we would like to have a chat about HAE and how do we talk to our friends and family about it. We would love to hear some of your experiences and share some do’s and don’ts when it comes to how to share our HAE with the people we love.

How to join?

Fill in the form below to secure your spot in our online meet-up. Please note, we have only 12 spots available per meeting!

2021: March Online meet-ups sign up

Name*
First Last
Email*
Country*
Date of birth*
DD slash MM slash YYYY
Age group*
- 12 - 16
- 17 - 25
HAEi Connect Consent*
I agree to the privacy policy stated below
As a community we would like to ensure that everyone has a good time participating in our online meet-ups! This is why we would like to inform you of the following rules and requirements:

1. Always be inclusive and respectful.
2. Remember to make it comfortable for everyone.
3. No bad language will be allowed.

All our meeting will be accompanied by an HAEi representative to ensure that there is a friendly environment.

Data collection and protection:

We want to keep you informed of all HAEi YC news including upcoming events, articles and blog posts coming your way, and if you would like to get more involved, we want to give you updates on available projects you can work on within the community.

To help us manage your contact details in a secure and stable environment, we are adding our member’s information into our member database; HAEi Connect. Making sure that our Youngsters’ Community members’ data is protected and collected for specified and legitimate purposes only, is our number one priority.

The HAEi member database, HAEi Connect, is a cloud-based membership database, as well as a communication management system, for HAEi's member organisations and for our Youngsters’ Community. HAEi Connect provides a secure, stable and EU-GDPR compliant platform for handling personal data. Access to the data is only given to people within HAEi, who are working with the Youngsters Community.

If you wish to have your information stored within HAEi Connect, we require your consent through provision of your contact details in the form above. Once completed, you will be sent an individually created time-limited (so passwords are not saved) link requesting you to update your data on HAEi Connect. Please NOTE that you can withdraw your consent at any time from HAEi Connect. All you need to do is send us a message (youngsters@haei.org) and let us know you no longer wish to receive communication emails from us and you will be removed from our database and email lists. It’s that easy!

If you have any questions regarding the HAEi YC, HAEi Connect or EU-GDPR feel free to get in touch with our HAEi YC Secretariat, Nevena Tsutsumanova (n.tsutsumanova@haei.org) who will respond to your queries.
Signature*
Hidden
Parent's consent
Parent/guardian Name*
First Last
Parent/guardian Email*
HAEi Connect Consent*
As a parent/guardian I agree to the privacy policy stated below
As a community we would like to ensure that everyone has a good time participating in our online meet-ups! This is why we would like to inform you and your youngster(s) of the following rules and requirements:

1. Always be inclusive and respectful.
2. Remember to make it comfortable for everyone.
3. No bad language will be allowed.

All our meeting will be accompanied by an HAEi representative to ensure that there is a friendly environment.

Data collection and protection:

We want to keep you informed of all HAEi YC news including upcoming events, articles and blog posts coming your way, and if you would like to get more involved, we want to give you updates on available projects you can work on within the community.

To help us manage your contact details in a secure and stable environment, we are adding our member’s information into our member database; HAEi Connect. Making sure that our Youngsters’ Community members’ data is protected and collected for specified and legitimate purposes only, is our number one priority.

The HAEi member database, HAEi Connect, is a cloud-based membership database, as well as a communication management system, for HAEi's member organisations and for our Youngsters’ Community. HAEi Connect provides a secure, stable and EU-GDPR compliant platform for handling personal data. Access to the data is only given to people within HAEi, who are working with the Youngsters Community.

If you wish to have your information stored within HAEi Connect, we require your consent through provision of your contact details in the form above. Once completed, you will be sent an individually created time-limited (so passwords are not saved) link requesting you to update your data on HAEi Connect. Please NOTE that you can withdraw your consent at any time from HAEi Connect. All you need to do is send us a message (youngsters@haei.org) and let us know you no longer wish to receive communication emails from us and you will be removed from our database and email lists. It’s that easy!

If you have any questions regarding the HAEi YC, HAEi Connect or EU-GDPR feel free to get in touch with our HAEi YC Secretariat, Nevena Tsutsumanova (n.tsutsumanova@haei.org) who will respond to your queries.
Parent/guardian signature*

Before the meeting:

You will receive a confirmation email with information on how to join our Zoom meeting space and 3 questions to prepare

If you are new to the HAEi Youngsters Community, Don’t Worry! We will start with a “round table” introduction, so everyone has a chance to say ‘Hello!’

Keep in mind

The online meet-ups are for everyone (HAE patients, caregivers, siblings and partners) between the age of 12-25. We only ask that you remember to be: