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The purpose of this event is to raise awareness about HAE through play and by involving youngsters to learn about their friends with HAE in a playful way.

Compassion and empathy are about learning to see what it feels like to be in other person’s shoes and through games and activities children will have a chance to “experience” how their friends with HAE run, draw, write with swellings on their hands and feet, but also how they manage to have fun in spite of having a rare disease.

I swell, but you cannot tell, I draw well!