Hi everyone,

We are delighted to introduce a wonderful new initiative we are very passionate about!

As you may know, the HAEi Youngsters Advisory Group and HAEi Leadership had a chance to meet in Berlin, Germany at the end of March. The meeting was a success – we had a wonderful time there talking about all things youngsters and what else we can do to support youngsters through the HAEi Youngsters Community. We can assure you there are so many new ideas, opportunities, and projects coming your way.

One thing we continuously come back to is our common belief that young people are the future of our community and the HAE advocates of tomorrow. The HAEi Youngsters Community’s main goal is to provide our members with support, networking opportunities, and a platform to share experiences with each other.

With that being said we are very excited to let you know that the youngsters advisory group is launching an outreach program ‘HAE Friends Around the World’ that aims to create connections and friendships around the world, sharing the benefits of being part of the global HAEi Youngsters’ Community.

Youngsters from the Advisory Group will be reaching out to youngsters internationally via social media to say hello and provide opportunities for youngsters to connect and learn from each other. The Youngsters’ Advisory Group hopes to build relationships, share experiences, and increase knowledge about HAE.

If you know of any youngsters in your country who might be interested in an international network of friends, please let them know they can get in touch with us via social media, email, or our website!

The HAEi Youngsters Community is for young people with HAE, their siblings, caregivers, and friends between the age of 12 and 25!

Don’t forget to sign up for our newsletter here!

We appreciate your support!

The HAEi Youngsters Advisory Group