You are not alone!

HAEi is a global network organization dedicated to raising awareness of C1 inhibitor deficiencies around the world.

We serve as an umbrella organization for national HAE patient representations around the globe. On the world map above, the blue color represents countries with an HAE patient group or a formal HAE organization while the orange color represents countries on their way to becoming HAE International members.

Currently, you will find national patient groups or formal HAE member organizations in more than 95 countries.

On you will find an interactive map and a list of all the HAEi member countries linking to pages for each country with more information.