Hi Youngsters 🙂
My name is Kamila, I’m 18 years old and I am a caregiver for my little brother Santiago who is an HAE patient. We are from Peru, and we love to spend time together listening to the music we like, go for a walks, cook and try new recipes.
Santiago was 9 years old he was diagnosed with HAE, and in 2020 we joined the HAE Peru. We felt very grateful to be part of HAE Peru, when we joined the organization we felt happy and relieved! It was the first time in three years that we were able to feel confident and secure to care him and learn how to control his HAE. So I would like to share and give that same feeling with more HAE patients who doesn’t know how to live with it.
I am really happy to join the HAEi Youngsters’ community and be part of the advisory group! I can’t wait to work together so more patients can experience a pacefull life, and just as I enjoy sharing my days with my brother, they can enjoy their lives with those they love the most 💙!
It doesn’t matter if you are a patient, family member or caregiver, talk in English of Spanish, you are always welcomed to contact me!