My name is Eirini (or Irene in English)
I’m an HAE patient from Greece and I was diagnosed at the age of 12.
Being the only one in my family with HAE, it’s been an amazing experience to get to meet other people and youngsters with the same disease.
I have gained so much confidence and pride in myself, I found the courage to step up and raise awareness in my country and internationally.
I am part of the HAEi Youngsters Committee and I want to help create a strong community, so no youngster feels alone or left out. The HAEi is constantly working to create a better future for all HAE patients and I’m proud to be a part of that.
I am always open to talk with any youngster, so don’t hesitate to text me at my social media and chat with me🙂