Nico’s book series

Reading the book with children makes a good starting point for a discussion about what HAE is all about.

The US HAEA teamed up with children’s author, Caryn Sonberg Seiler, to develop a three-book series that will help kids learn about HAE in a relatable and interesting way. Caryn wrote the books for children with HAE and their siblings. Both of whom will be learning to live and deal with HAE. The books also include quick definitions for more challenging words.

The books are available as Audiobooks in English and one also in Spanish.

For more information about the HAEA Children’s Book Series, contact Lisa Facciolla at