One challenge we all face when being apart is maintaining the motivation to continue advocacy work. To help with this specific challenge we would like to share stories from members of the HAEi YC that demonstrate the power that an individual can have.

If you are happy to participate, we have made a short list of 8 questions to support you. Have a look – you don’t have to finish the questions today – you can always revert and finish later on.

The questions are intended to support you in writing you blog post and find out about some of the specific challenges you faced or are facing as a young HAE patient. It would be great if you could provide a response to the questions to help us tell your story. If you feel that any of the questions aren’t relevant to you or you don’t want to answer one, please feel free to skip to the next question.

Want to share your story? Find the questions to guide you here!

Have a look at the Power of One stories we already have for you: