One challenge we all face when apart is maintaining the motivation to continue advocacy work. To help with this challenge, we would like to share stories from members of the HAEi YC. Stories that demonstrate the power that an individual can have.

If you are happy to participate, we have made a short list of 8 questions to support you. Have a look! You don’t have to complete the questions today – you can always revert and finish later.

The questions are intended to support you in writing your blog post and learn about some of the specific challenges you faced or are facing as a young HAE patient. It would be great if you could provide a response to the questions to help us tell your story. If you feel that a question is relevant to you or don’t want to answer one, please feel free to skip to the next question.

Want to share your story? Find the questions to guide you here!

Have a look at the Power of One stories we already have for you: