The Power of One – questions

Rikke Sørensen2020-10-16T09:15:19+00:00April 1st, 2020|

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The questions below are intended to support the article and find out about some of the specific challenges you faced. It would be great if you could provide a response to the questions to help us tell your story. If you feel that any of the questions aren’t relevant to you or you don’t want to answer one, please feel free to skip to the next question.

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The Power of One – questions

Name*
First Last
E-mail*
Please tell us a little about yourself; where you are from, what was your first involvement with the HAE Youngsters’ Community and why is the community important to you?
What does living with HAE mean to you? (x2 struggles, x4 blessings).
What is the biggest HAE-related challenge you have faced and how did you overcome it?
Who supported you during the challenges you faced and how did they help you achieve your goals?
How has overcoming the challenge changed your outlook on life with HAE?
What is the most rewarding part of speaking for HAE patients? and is there a special memory/story you would like to share?
Have you ever experienced a negative response from someone regarding HAE and how did you handle it?
Do you have any advice for other Youngsters who are facing challenges or want to help the HAE community?
What is your message for the HAE Youngster’s Community?
What do you hope to see in the future for the HAEi Youngsters’ Community?
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