#togetherapart: Meet Ava

With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.

Hi – I’m Ava

I’m 14 years old

I’m a Sibling of a HAE patient

And I live in United States

I hope that HAE patients in the future:
I hope that HAE patients in the future will someday be able to live a normal life.

The HAEi Youngsters’ Community is important because:
The HAEi Youngsters’ Community is important because it gives an opportunity to get to know other people that are living through the same situation that you are. It’s a great way to meet other people that you have something in common with, and is a constant reminder that you aren’t alone.

My favorite quote is:
“You’ll never know your strengths until you face your troubles”

‘Creating a Path to Better Health’ means:
“Creating a Path to Better Health” is what connects to HAE community. Being able to connect with a large group is the best way to make a difference within the HAE community, and together we can all create a path to better health.

This is my personal story:
Some of the most memorable moments I have with my sister are in a hospital, which is a lot different from most siblings. Even though hospitals visits can be difficult, it is something that connects my sister and I. To many people hospital visits are unlikely, scary situations. But for my sister it can be just another normal day. My favorite hospital story with my sister was one of the first times she got surgery. After every surgery a child life specialist came into her room and offered her toys and a trip to the playroom. The specialist offered her a choice of two toys to pick from, and she asked if she could have both. Of course because she was a little kid she LOVED toys, but what I didn’t know was that she was actually giving one to me. Ever since that hospital visit I’ve looked at my sister differently. Despite all that she had just gone through, she immediately thought of doing something nice for someone else. From that point on, my sister has been a constant reminder to me that I should never let anything hold me back. My sister has been through some tough situations, but she never lets that get the best of her.

#togetherapart – meet us …