#togetherapart: Meet Dejan
With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.
Hi – I’m Dejan
I’m 18 years old
I’m a HAE patient
And I live in Macedonia
I hope that HAE patients in the future:
Will live needle free life, have much better quality of life!
The HAEi Youngsters’ Community is important because:
I am part of these wonderful family that care and share beautiful things with all of us.
My favorite quote is:
Always smile and be happy :-)
‘Creating a Path to Better Health’ means:
Brighter future for all HAE patients and less burden for our families.
This is my personal story:
I live in Skopje, N.Macedonia. I had HAE symptoms at early age, but because I don't have family history, I was diagnosed at the age of 6. I had very frequent attacks, and I spent most of the time in hospital, being absent from school and regular activities. I struggled a lot when we didn't had medications in my country, but my mother joined patient organization HAE Macedonia and together with Natasha Jovanovska and Verce Jankovska succeded in getting the therapy for all HAE patients that brought relief not only in my life, but in all other patients and families with HAE. I study law in secondary school SABA, and I hope that this will help me assist in our advocacy efforts with our patient organization, because I don't want people who need care not to be able to get it! I love nature, traveling, going out with friends and taking care of animals.