#togetherapart: Meet Dominika

With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.

Hi – I’m Dominika

I’m 23 years old

I’m a HAE patient

And I live in Poland

I hope that HAE patients in the future:
Can no longer be worring about their health and can live normal life

The HAEi Youngsters’ Community is important because:
I don’t feel alone. I can have friends all over the world and have a chance to exchange the experiance.

My favorite quote is:
“Twenty years from now you will be more disappointed by the things that you didn’t do than by the ones you did do.” – Mark Twain

‘Creating a Path to Better Health’ means:
That in the future I can have a better access to medication. To create a path we need to work together. It’s a teamwork!

This is my personal story:
I was diagnosed when I was 4 years old. It was beacause my dad had a throat attack and in Sweden they discovered that it was HAE. My attacks started during adolescence. It started with stomach ache and my mother thought I was caused by eating fast-food. One time my stomach hurt so much that I had to go to the hospital and there they immediately said that I was pregnant. I was only 15 years old! After that we knew that that was an HAE attack. Then I started to search more about it and increase not only my knowledge about it but my friends, my teachers, doctors and other about HAE.  In my family my grandma,my dad, my older brother and my little sister have HAE.

I didnt think that there is so mamy amazing people with HAE! I’m really gratefull to have a change to meet them and talk with them :) 

#togetherapart – meet us …