#togetherapart: Meet Eirini

With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.

Hi – I’m Eirini

I’m 20 years old

I’m a HAE patient

And I live in Greece

I hope that HAE patients in the future:
Have access to medication

The HAEi Youngsters’ Community is important because:
It makes us stronger and let us create a better future for our community

My favorite quote is:
It is good to be loved. It is profound to be understood.

‘Creating a Path to Better Health’ means:
Creating an opportunity for access to different medication that suits better every patient individually. Having a holistic approach to striving for better living of a patient in different aspects of their life(ability to exercise, have good mental health etc)

This is my personal story:

I remember growing up being isolated at home fighting for an unknown “enemy” that was causing pain and disformed my body. I felt like I was being punished and I couldn’t understand why.

Little did I know, years after, I would be proud to share about my HAE aka my strength and how I fight for a better future for me and for others. Having these many opportunities and so much support, I now feel like we are truly blessed.

 

#togetherapart – meet us …