#togetherapart: Meet Eliana
With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.
Hi – I’m Eliana
I’m 17 years old
I’m a Sibling of a HAE patient
And I live in United States
I hope that HAE patients in the future:
Will be able to have an easier access to medications and treatments.
The HAEi Youngsters’ Community is important because:
They spread awareness and help people to not feel alone.
My favorite quote is:
“It isn’t where you came from; it’s where you’re going that counts”
‘Creating a Path to Better Health’ means:
lowering costs of medications and caring for others
This is my personal story:
I have been a caregiver/ sibling to my sister Jess who has HAE. I’ve always helped keep her company when she received her treatments and been by her side when she didn’t feel well. I am very happy with all the support we get from the HAE community and hope that we only get bigger!