#togetherapart: Meet Elizabeth

With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.

Hi – I’m Elizabeth

I’m 22 years old

I’m a HAE patient

And I live in United States

I hope that HAE patients in the future:
Have plenty of support and connections in the HAE community!

The HAEi Youngsters’ Community is important because:
It helps us all connect and share our stories.

My favorite quote is:
I’m perfectly, imperfect.

‘Creating a Path to Better Health’ means:
Awareness and earlier diagnosis to rare disease.

This is my personal story:

Hi, I’m Elizabeth. I was diagnosed April 1st, 2013 after months of swelling and hospital stays trying to figure out what it was. I was pulled out of school through highschool and put in tutoring because I was having so many back to back swell days. I now have a port. I’m married and expecting my first child with better control of my HAE. Just remember you’re never alone even when you feel like you are! The HAE community has your back!

#togetherapart – meet us …