#togetherapart: Meet Facundo

With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.

Hi – I’m Facundo

I’m 22 years old

I’m a HAE patient

And I live in Argentina

I hope that HAE patients in the future:
have the tools to treat and prevent HAE crysis, while walking together this path.

The HAEi Youngsters’ Community is important because:
It lets us know that we are not alone. Provides support to young people around the world who understand what we live.

My favorite quote is:
"Many small people, in small places, doing small things, can change the world" -Eduardo Galeano.

‘Creating a Path to Better Health’ means:
More tools to prevent and manage HAE crises.

This is my personal story:
During the 2017 summer camp (Frankfurt - Germany) I suffered a severe crisis that I tried to hide, forgetting that everyone around me once lived what I was living. I retired so as not to alarm anyone, and the next thing I remember was my friends giving me medication. Being accompanied without explaining anything, made me feel the importance of community.

#togetherapart – meet us …