#togetherapart: Meet Jacy

With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.

Hi – I’m Jacy

I’m 20 years old

I’m a HAE patient

And I live in United States

I hope that HAE patients in the future:
Are all able to receive and afford treatments.

The HAEi Youngsters’ Community is important because:
It’s important because it allows young people to connect with other people that are going through the same things.

My favorite quote is:
“Believe you can and you’re halfway there.”

‘Creating a Path to Better Health’ means:
It means that you’re making a way for healthier lives for the future.

This is my personal story:
I was diagnosed with HAE when I was 6 years old. I have been life-lighted  in a helicopter one time and been rushed to the hospital 3 times in an ambulance. I have not had an attack for almost two years since I started on a new medication.

#togetherapart – meet us …