#togetherapart: Meet Luke

With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.

Hi – I’m Luke

I’m 13 years old

I’m a HAE patient

And I live in United States

I hope that HAE patients in the future:
Won’t have to suffer through the attacks and be without proper medication.

The HAEi Youngsters’ Community is important because:
They are our future and will stand up for hae patients.

My favorite quote is:
Prepare for the worst, hope for the best.

‘Creating a Path to Better Health’ means:
Doing all you can to live a healthy life.

This is my personal story:

I was first diagnosed with HAE when I was 9 even though I was having symptoms since I was 7. I didn’t think much of it because I didn’t really care because I didn’t understand what was going on. But as the attacks got worse, I started to care a lot. We didn’t have access to medication right away so I would get multiple IV sticks at the hospital because I didn’t have great veins. We eventually got the medication and now I treat at home when I get any symptoms from HAE. It is so much better knowing I can take care of an attack quickly instead of going to the hospital.

#togetherapart – meet us …