#togetherapart: Meet Michaela
With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.
Hi – I’m Michaela
I’m 22 years old
I’m a HAE patient
And I live in United States
I hope that HAE patients in the future:
understand that they're not alone. We may not live near each other but we have a special bond and we will get through it together.
The HAEi Youngsters’ Community is important because:
as a young adult with a rare illness, it's easy to feel alone or lost. The Youngsters' community gives me hope and faith to keep pushing forward. I definitely would not be where I am today without this community!
My favorite quote is:
Jeremiah 29:11-12 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call on me and come and pray to me, and I will listen to you.
‘Creating a Path to Better Health’ means:
Doing everything in our power to make our quality of life better. We deserve to live "normal" lives and every single day we are making that possible.
This is my personal story:
I was 15 when I was diagnosed with HAE. None of my family members have it (to our knowledge) and it took a long time to come to terms with it. Honestly, there were days I prayed it would have been an illness that was “worse” but more common so people would understand it better. I was angry and felt alone for years, constantly questioning why it was me.
When I was 22, I had the opportunity to be a social media intern with the HAEA and attend Capitol Hill Day in Washington DC. I went into it thinking it would be a boring event where I would blend into the crowd and not get much out of it. Man, was I wrong! I met some of my absolute best friends and created relationships with people who were just like me. I had never felt so motivated, welcomed, and excited to live my life. Communities like these create opportunities you may have never considered or thought were an option.