#togetherapart: Meet Pedro Luiz
With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.
Hi – I’m Pedro Luiz
I’m 18 years old
I’m a HAE patient
And I live in Brazil
I hope that HAE patients in the future:
have easier access to medicines and also find trained doctors in all hospitals.
The HAEi Youngsters’ Community is important because:
because they keep patients and caregivers together to share knowledge.
My favorite quote is:
"Where there is love there is life." - Mahatma Gandhi
‘Creating a Path to Better Health’ means:
The Best way is to raise the patient's and family's awareness, always doing medical monitoring and using medication to control crises. Dissemination to the to research.
This is my personal story:
I have had HAE attacks since I was very young and I was treated with allergist doctors and gastroenterologist doctors.
There were several hospitalizations and many drugs without success. I got my diagnosis in 2017, when I was 15, after several crisis.
I remember when my mother talked to our family and realized that many of us were experiencing the same symptoms.
We looked for an answer and with the help of the internet, finally, we did the blood test that confirmed my diagnosis of HAE. My grandfather, my father, my nephew and others in my family were diagnosed after me.
Today we live more peacefully, because we have the diagnosis and we have forms of treatment. I am a student of Veterinary Medicine, and I live a great live, despite having a rare disease, I hope to follow my dream without problems.
I am very happy to be part of the HAE family and I want to be able to contribute as much as possible.