#togetherapart: Meet Raegan

With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart.

Hi – I’m Raegan

I’m 18 years old

I’m a HAE patient

And I live in United States

I hope that HAE patients in the future:
recieve more preventative medications

The HAEi Youngsters’ Community is important because:
It helps you make friends with people who are just like you

My favorite quote is:
God only gives his battles to his strongest soldiers

‘Creating a Path to Better Health’ means:
Not letting any medical issues stopping us from achieving our goals and letting us better ourselves and mental health

This is my personal story:

In 5th grade I was diagnosed with a brain tumor and in 6th with HAE.  I looked at it like my world was over and it was a curse but then I went to my first conference in Vienna and realised how much of a blessing this disease was and how many amazing friends and true people I met! They are like a family to me and I am so thankful I have each and everyone of them in my life.

#togetherapart – meet us …