Someone’s opinion of you does not have to become your reality.

The journey of a thousand miles begins with one step.

Many small people in small places doing small things can change the world.

Remembering the past, living the present – looking to the future!

Who are we

Welcome to the HAEi (Hereditary Angioedema international) Youngster’s Webpage. The website dedicated to young people, or ‘youngsters’ living with HAE. – find new friendships and discover life changing experiences by learning about different countries, cultures and traditions.

Laughing and sharing each other’s daily lives, we walk together for a better quality of life.

You are not alone, Welcome to our community!

Our stories

A collection of content created by our community to share our journey with HAE.

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We need your story

Would you like to get involved in our community? If you would like to contribute to our blog and other exciting projects, please provide your contact details using the form below.

Youngsters events

Get social with us #haeiyoungsters