to the HAEi Youngsters’ Community
The website is dedicated to young people, or as we like to call ourselves – youngsters – living with Hereditary Angioedema (HAE).
Whether you are newly diagnosed, starting school, university, moving abroad or starting a new job, this is the place for you. On this website you can find resources and tools that can help you learn more about HAE. Whether you want to build awareness about HAE in your community or become an HAE advocate, or simply need a way to explain what HAE is at school – we got you covered!
Our goal is to learn, stay connected, grow our global community, share our experiences and have fun together!
Join us and together we can make memories to last us a lifetime!
The Youngsters Advisory Group