HAEi Youngsters moving online

As you have heard from previous HAEi communication the 2020 HAE Global Conference scheduled to take place 14-17 May in Frankfurt, Germany has been cancelled. Thankfully, we live in a time that allows us to stay in touch online!

We are happy to let you know that over the next weeks we will share with you a number of activities, projects and challenges you can do from home and share with us via Facebook, Instagram or the Youngsters website.

Here are some of the things you should look out for:

Join the youngsters website project #togetherApart

We want you to help us collect fun photos, videos, boomerangs and stories from your social distancing days and more so we can all be #TogetherApart.

Click and join us staying #togetherapart


Come up with some creative things to pass the time while social distancing – whatever you’re doing, we challenge you to participate in the fun and engaging #BeyondHAE Challenge.

Know more and participate!

LIVE HAE Storytelling Panel – be there!

Throughout April we aim to answer some of the most frequently asked questions youngsters have in relation to their life experiences and how those relate to HAE. All lives will take place on Instagram.

Click and see more so you don’t miss out!

HAEi Advocacy Academy and HAE Trivia Challenge

In April we will launch our brand new HAEi Advocacy Academy – an online learning platform to help you build your advocacy skills and become a young HAE advocate.

Be the first to know when HAEi Advocacy Academy and the HAE Trivia Challenge go LIVE!

Tune in on the #BeyondHAE Podcast

Each month there is a new episode of the #BeyondHAE podcast hosted by a different youth from the HAE community with a variety of topics related to HAE and being young.

Listen to the #BeyondHAE Podcasts

The Power of One – blog series

The 2019 Global HAE Youth Advocacy Workshop in Atlanta highlighted that the HAEi Youngsters’ Community (HAEi YC) members liked hearing each other’s stories and sharing their own experiences. Each youngster has a different story to tell!

Want to tell your story? We would love to hear it.