Swollen Nation Army music video
Here's our parody of 'Seven Nation Army' by The White Stripes. By the Red Polkadots The purpose of the song [...]
Emma’s Poster
Most people think HAE is something to be afraid of. I see it as a way to be different. I [...]
Infographic about HAE
For you to download and print ... An easy to understand infographic to explain Hereditary Angioedema (HAE), common triggers [...]
Youngsters from around the world
Ilke Irem Kurt My name is Ilke Irem Kurt and I'm 17. I'm from Istanbul, Turkey. I'm not a [...]
HAE Life Hacks :-)
Tips to Take Control of HAE Move your mouse over the categories below to view tips from the [...]
Big plans!
How would you like to have an easier way to be connected with young people with HAE in the [...]
Being in a relationship with HAE
5 Youngsters talk: How do you tell your partner you have HAE? How are HAE patients’ partners dealing with [...]
Three video interviews about HAE (video in spanish)
We asked these two questions: 1. What does living with HAE mean to you? 2. What is important in this [...]
We asked some youngsters a few questions …
We asked some youngsters at the 2018 conference a few quick questions. Are your usual attacks life threatening? [...]
Selfie hunt Vienna
We HAEi Youngsters went to Vienna downtown to bingo selfie. We had the opportunity to be creative and explore [...]
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