Help your organization get onto Social Media: Create a Facebook/ Instagram/ Twitter account, plan your content calendar, create engaging posts and increase your follower numbers.

If your organization already has social media accounts, you can plan and create a campaign to support its goals and activities.

For, example, a campaign to create awareness and demonstrate the power of advocacy that can be used on social media.

Educational modules: Writing for advocacy, multi-media skills

Help your organization capture and share personal stories from people with HAE in your country. Develop your questions, hold the interview and then edit the written content or video to go on your website. You may even be able to create the webpage as a series of blogs/articles.

Not sure who to interview? What about a feature series on advocates from your member organization and advocates from around the world (RPAs, HAEi Leadership, etc.)?

Educational module: Writing for advocacy

Does your organization have a website? Would you like one? Would you like some help updating the content or adding new features? Your project could be to get your organization online, help revamp existing content, or add new sections.

Educational modules: Multi-media skills, writing for advocacy

Does your organization have news to share? Are they planning an event, doing a survey, or making an announcement? Your project could be to create and implement the communications plan to create awareness of the initiative. For example, develop a press release, contact the media, advise the spokespeople, and plan your social media promotion.

Educational module: Multi-media skills

Does your organization have a meeting or event coming up? Or, could you organize a local meeting for young people with HAE in your organization? Could you organize a sporting or walking event?

You can put your project management and presentation skills into practice by getting involved in delivering this. You can research the audience, develop or review the project plan, and develop or review presentations to help them effectively deliver your messages.

Educational module: Foundational

Does your organization have a Youngsters Community? Or would they like to develop specific support for Youngsters in your country?

HAEi LEAP will give you the skills to start your own Youngsters Community; create a logo, develop a webpage, think about planning a meeting, develop a newsletter, create resources (written or video) specifically for a youngster audience. There are lots of ideas for what this could look like or include on youngsers.haei.org

Educational modules: Foundational, multi-media skills, writing for advocacy

How does your organization look after its members’ information and keep in touch? Your project could help your organization be more organized via HAEi Connect and develop a newsletter to share and keep everyone updated with news from your community.

Educational modules: Foundational, multi-media skills, writing for advocacy

Is your organization newly established? Have you had a chance to connect to other relevant “sister” organizations in your country? Does your organization need background materials or specific brochures to support different aspects of living with HAE?

Your project could be centered around creating a print/online media pack with background information about HAE, introduction letters, logo packs, etc., and getting introduced to other rare organizations in your country. Or, developing a brochure or video to support a particular aspect of living or supporting people with HAE, e.g., a caregiver brochure, or materials to help classmates understand HAE.

Educational modules: Multi-media skills, writing for advocacy