HAEi Youngsters’ blog
Isabel’s Kilimanjaro Adventures : Daily updates
Written by Isabel Brunkan I had the opportunity to summit Mount Kilimanjaro (5,895 meters / 19,341 feet) as part of Osmosis and Elsevier’s Year of the Zebra initiative! An incredibly serendipitous trip, the Year[...]
Top 5 Tips for Traveling with A Rare Disease
Written by Isabel Brunkan Packing for any trip requires thought but as someone traveling with a rare disease there are always a few extra steps that go into the process. These are the main[...]
Meet Kamila from the HAEi Youngsters Advisory Group
Hi everyone, My name is Kamila, I’m from Trujillo-Peru. Q: What was your first involvement with the HAE Youngsters’ Community and why is the community important to you? K: It is important to me because[...]
Meet Jess from the HAEi Youngsters Advisory Group
Hi everyone, My name is Jessica Bogoyevitch and I am from the beautiful city of Brisbane in Australia. Q: What was your first involvement with the HAE Youngsters’ Community and why is the community important[...]
Catalina’s Story – Living life with HAE
Hello, I am Catalina Menéndez, I live in Buenos Aires, Argentina, and I am 32 years old. First of all, I want to thank HAEi for giving me the opportunity to share my HAE patient[...]
Youngsters’ Advisory Group at the 2022 Global Leadership Workshop
What a weekend – Together Again! Excitement and joy filled the air as members of the HAEi Youngsters Advisory Group got together at the 2022 HAEi Global Leadership Workshop. “It was amazing to interact[...]
HAEi Youngsters: Let’s Hang Out!
Hello everyone, It’s the HAEi Youngsters’ Advisory Group here, and we are very excited to welcome you to this next step for the HAEi Youngsters’ Community. We are launching a new online project –[...]
One small step… One giant LEAP
Young people are really important, and we are passionate about the young people in our global HAE family. HAEi LEAP is designed to meet the needs our Member Organizations highlight about engaging with young people[...]