Hi everyone,  HAE Scandinavia celebrated its 20-year anniversary on November 12-14, 2021 in Copenhagen, Denmark! Congratulations!!!  Nanna and Victoria, who recently joined the HAE Scandinavia board wanted to share their experience and tell us more [...]

 Hi everyone,  My name is Dominika and I am from Poland. This blog is a very special one for me and I hope you enjoy it! Just a reminder for the end of the year [...]

Two of the HAEi Youngsters Community members have recently joined the Board of their national member organization, HAE Scandinavia. Nevena Tsutsumanova, HAEi’s Operations Manager, had a Zoom sit down with Nanna (20) and Victoria (21) [...]

For many of us, this fall will be the first time back in school for full days, 5 days a week since March of 2020. This means for many, in-person schooling is a distant memory. [...]

We are very pleased to share with you Pravalika's story. Pravalika is from India and is very passionate about photography.  You can read Pravalika's story below.  Where are you from? I am [...]

We are very pleased to share with you Dejan's story. Dejan is from North Macedonia and is an HAE patient. His story "I want to be like the others" was recently published in a [...]

The HAEi Youngsters Community has gone from strength to strength in the last couple of years, and it’s all thanks to the members: young people aged between 12 and 25 from all over the [...]

By Morag Faulds We all know how difficult it can be to get the right emergency treatment and medical advice for HAE, even in our own country. Being so rare, most doctors and nurses [...]