HAEi Youngsters’ blog
Pravalika’s story #BeyondHAE
We are very pleased to share with you Pravalika's story. Pravalika is from India and is very passionate about photography. You can read Pravalika's story below. Where are you from? I am[...]
Dejan’s story
We are very pleased to share with you Dejan's story. Dejan is from North Macedonia and is an HAE patient. His story "I want to be like the others" was recently published in a[...]
Will you be the next member of the HAEi Youngsters’ Community?
The HAEi Youngsters Community has gone from strength to strength in the last couple of years, and it’s all thanks to the members: young people aged between 12 and 25 from all over the[...]
The importance of our global community
By Morag Faulds We all know how difficult it can be to get the right emergency treatment and medical advice for HAE, even in our own country. Being so rare, most doctors and nurses[...]
New look and feel of the HAEi Youngsters’ website
The HAEi Youngsters Advisory Group and HAE International have collaborated on this project to revamp our online presence – and we’re delighted with the results, and hope you like them too. So why do[...]
HAE & Relationships
Hi everyone, my name is Hana 🙂 I wanted to share with you my thoughts on HAE and relationships and why I think it's important we have that conversation with our partner! Let's agree that[...]
Class of 2020
Hi Youngsters, Welcome to the blog post that celebrates success, achievements and the future! Graduation season is now over and we have gathered pictures and reflections from youngsters that have graduated this year –[...]
#TogetherApart
With the #TogetherApart initiative we have collected fun photos, videos, boomerangs and stories from you of your social distancing days and more – so we can all be #TogetherApart. Want to join the #TogetherApart[...]
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